Five Pounds

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Dear doctors,

I lost 5 pounds. I know, not a big deal to you but to me it’s a huge event. Because of the circumstances surrounding this event I want you to hear me. Not as a woman who suffers from obesity and diabetes but as a human being. I need you to listen carefully.

Let me tell you my story.

About a year ago I went on Victoza. An insulin that has been shown to help diabetics lose weight. This was an important victory for me because I had to not only fight my government to cover it but I had to fight my doctor to prescribe it.

Why?

My doctor was angry at the government for not covering the drug therefore, he didn’t want to prescribe the drug to those who couldn’t afford it. The poor like me. He initially made the decision to withhold the drug based on my economic status. Let that sink in for a moment.

After I was approved for coverage of the Victoza, my diabetic doctor prescribed a dose of 1.8mg. That’s important to this story. I initially began to lose weight. In part because of my natural eating habits and in part of my love of exercise. However, a large part was due to the Victoza.

In January 2018 I had a slip and fall where I broke my funny bone. Literally. A radial tip fracture left me in pain and severely phobic of slipping and falling again. I sought comfort foods and avoided the outdoors. Yes, I was miserable and gained weight.

After a time I got control of things again and got back to my routine. However, I didn’t lose weight. I didn’t gain but I didn’t lose. In October 2018 I found out why.

My family doctor informed me that to lose weight effectively I had to be on 3.0mg of Victoza. A higher dose than I was on. When I asked my diabetic doctor about it he got angry. Accused me of self-harm and said I was looking for a magic pill.

However, I’ve had time to think about that visit and let my anger simmer for a while. Let me sum up what I know;

  • He saw my fat and not me. He knew nothing about my eating habits, exercise routine or other health concerns. Nor did he care.
  • He deliberately withheld information due to his belief that my weight was solely the result of overeating and his political views. He would see my obesity no other way no matter what I told him or what facts I presented. Obesity had one cause and that was it.
  • He decided that I was incapable of making an informed decision about my own health care. A fat person obviously doesn’t care about their health so just decide for them.

Doctors, you don’t have the right to decide for me what is right for me. It’s your job to work with me to find the right course of action unless doing so would put others at risk. I rely on your information and experience so that I can take an active role in my health care. If you withhold it because of your own prejudices, you put me at risk for the sake of your ego.

I will do my part in my health care but what I won’t do is let you use my health to masturbate your ego. If you have a problem with that then maybe you shouldn’t be taking care of patients. Perhaps you should go into research instead where it won’t be a problem.

Sincerely,
A Fat Patient.

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Holding Health Hostage

Comments Off on Holding Health Hostage

I’m a diabetic. Just like my father, my mother, my sister, my brother and even our family cat before she passed away. Diabetes doesn’t just run in my family, it holds marathons. So I’ve become something of an expert on the subject.

Getting diabetes was inevitable and not something I wanted. It’s a death sentence and a slow one at that. Yes, it’s manageable but not curable. Insulin is not a cure, it’s a means to help my body do what it can no longer do. However, living with diabetes is something that becomes background noise after a while and, after a while, you learn to accept everything that comes with it like the anxiety and depression. The struggle to merely maintain your weight. Losing weight is a dream of wisp-like faeries and morning stars to wish upon.

I’m also on Income Support. What was once called welfare. I’m there because of a variety of factors which include depression, anxiety, Nonverbal Learning Disorder and other crap. Diabetes and depression and anxiety are old bed buddies. When the sugars start sliding up and down, depression and anxiety are there to make sure the ride is memorable. Freddy Kreuger memorable.

But I live with it and I work with my doctor to keep the worst at bay. It’s here where I depend on my government to put in their own effort. As someone who lives on Income Support, I need my diabetic supplies covered. This is not an option. I can’t play guess which meds we’ll take today. Diabetes is a mean bitch if she doesn’t get her fix.

So about six months ago I fought with Alberta Health to cover a drug called Victoza. Originally I thought it would help me with weight loss as it’s been shown to have a great effect on it. That didn’t happen due to a slip and fall I took in January which prevented me from exercising for a while.

However, Victoza did do something.

I need to explain something here. There is a measurement that all diabetics are aware of and that’s their A1c. This is a test that shows what blood sugars have been doing over an average of the last three months. I’m pretty sure there’s a bit of Lothlorien magic going on here as well but that’s another story.

For someone without diabetes, their A1c should be in the range of 4 – 5.6. For someone with diabetes, the goal is to keep it below 6. Back in November, my A1c was 8.3. By the time June rolled around and I’d been on Victoza for only six months, my A1c dropped to 6.3.

That’s a damn near miracle.

However, this is where things get sticky. Apparently there’s a federal agency in negotiations with Novo Nordisk Canada over the price of Victoza. So, rather than cover the drug, there is a ban on any coverage at all. Simply put, they don’t want to cover it because that would weaken their negotiation strength.

When I approached Minister Sarah Hoffman’s office, I was told that they not only would refuse to cover it, they wouldn’t even try to get involved in these price negotiations because it wasn’t their job.

So let’s put this into perspective.

My health is being held hostage by a drug company, a federal agency and a provincial ministry because they all want to have the upper hand in negotiations over fucking pennies.

Meanwhile, over here I’m struggling to lose weight, maintain my health, watch my sanity and keep all these balls in the air while trying to start a business and placate Income Support.

And people wonder why I am fighting so damn hard for the basic income program.

So I’ve come to a point where I just want to curl up in a ball and say, “I give up” but I’m too damn stubborn for that. This isn’t the first windmill I’ve tilted at and it won’t be the last. This is my life and health I’m fighting for.

Just call me Don Quixote

 

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